Worried About Federal Budget Cuts

Dear Doris,

Last year, I was forced to leave my job so I could dedicate my time to care for my elderly mother. I applied for Medicaid and have been receiving benefits ever since. I'm alarmed by the potential Medicaid cuts and by the proposed work requirements. What other options might be available should these changes become reality and is there anything I can do to make a difference in policy?

|Respectfully,
Joy R.

Dear Joy,

First and foremost, you have taken on a difficult yet rewarding responsibility as the full-time caregiver of your mom. I brought my mom into my home to care for her, and while I ultimately did not leave the workforce like you had to, I do understand the magnitude of the commitment and personal sacrifice that you are making. I don’t know if it will help you at all, but when all was said and done, I did not regret one moment of the time that we shared. Caregiving is difficult, but it’s all worth it in the end.

 There are currently no Medicaid work requirements in NY, and from what I have read, most states that either have or are considering Medicaid work requirements, exempt parents of young children and caregivers of those with disabilities.

 I certainly do understand your anxiety; it is also very real for all of us in the Aging and Disability field. The constant influx of “what might happen” messages that are flooding our inboxes and our thoughts about the final iteration of the “Big Beautiful Bill” when it gets through the Senate has many people on edge. But there are also MANY people who are fighting for what is right— non-profit organizations, our legislators, and individual citizens. I have found that when I have felt helpless about the things that are happening and I don’t know what to do to help, sharing my frustration and fear with my representatives and letting them know how I feel and where I stand can be helpful.

 I know that it can be intimidating to talk to legislators, but I learned about this very cool app, 5 Calls. It gives you are current list of issues, the background and a script for talking points. It can tell you who your representatives are and the best ones to contact for whatever issue you choose. It takes away all the fear. If you only want to leave a message, call before or after office hours. Phone calls are by far the most efficient way for your legislators to hear your voice. The more people that call, the more they understand where their constituents stand. Be proactive, make a few phone calls— I promise you will feel more empowered.

 The New York State Office for the Aging (NYSOFA) estimates that there are 4.1 million caregivers in New York State. These caregivers provide 2.68 billion hours of unpaid care, which would cost $32 billion annually if paid for at market rate.  There are too many of us to be ignored!

 Remember, especially in these stressful times, you must take care of yourself. Every moment that you can step away, even if it’s to just a few deep breaths, can be a moment of respite and renewal. Look for opportunities to do something for yourself every day; ask a friend or family member to give you a break from responsibility. It is imperative that you get regular breaks, so that you can continue to provide the important and loving care for your mom.

 I wish you all the best in your caregiving journey,

 Doris