Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

NEW! Lifting Our Voices for Caregivers

Mini Grant  Awardees

NYSCRC has awarded two mini grants in the amount of $3500 for the development or expansion of volunteer respite programs.

 Congratulations to:

Grace Lutheran Church - Broome County

Grace is developing the "Senior Care Respite Program" which will provide a monthly opportunity for caregivers to drop off their loved one at the program and provide much needed relief for caregivers in the Vestal, NY area.

Greece Baptist Church - Monroe County

Greece Baptist is developing the "Give Me a Break" Drop off Respite program that will be hosted monthly and will provide a well deserved break for caregivers in area of Greece, NY

Both of the dedicated faith communities are committed to using REST to train and support their volunteers

NYSCRC Sustainability

The NYS Caregiving and Respite Coalition along with it’s partners, the NYS Office for the Aging, Monroe County Office for the Aging and NY Connects began a Sustainability Process in 2018.  As part of that process, The 2018 Lifespan Respite Summit convened in Albany, NY on October 18, 2018.  Under a partnership with Administration on Community Living (ACL) and ARCH National Respite Technical Assistance Center.

  • The purpose of the Summit was to: strengthen state and community partnerships to sustain Lifespan Respite activities; develop strategies to maximize use of existing respite resources and identify and leverage new respite funds; engage in sustainability planning; and generate innovative activities for future development.

Consistent with other states’ summits, this event aimed to connect policymakers, researchers, family caregivers, and statewide partners to exchange knowledge and expertise, leading to the development of a statewide strategy for strengthening the respite care system for all individuals and caregivers, across the lifespan.

Significant effort was made to include representatives across the age and disability Spectrum. We were successful in bringing caregivers, professionals from the Office of Persons with Developmental Disabilities (OPWDD), Department of Health (DOH), the Veteran’s Administration (VA), New York State Office for the Aging (NYSOFA), Office of Children and Family Services (OCFS) and the Office of Mental Health (OMH) to provide insight into Respite across systems.

The Summit Objectives were three-fold:

  1. To identify state-level policy and program needs and goals related to respite care services for children, adults and aging population.

  2. Strengthen state and community partnerships to sustain Lifespan Respite activities

  3. Develop strategies to maximize use of existing respite resources.

On January 15, 2019 a WebEx meeting was held for all Summit participants and other stakeholders to share the Summit Outcomes and Next Steps.  Listen to recording

The Coalition is seeking committed individuals and organizations to serve on the reorganized Advisory Board. If you are interested in the important work of building a statewide sustainable respite system and would like to participate on an advisory board sub committee, contact Doris Green

 Legislative Update

Udall, Heinrich, Klobuchar Introduce Care Corps Demonstration Act
On October 17, U.S. Senators Tom Udall, Martin Heinrich, and Amy Klobuchar introduced the Care Corps Demonstration Act to "build and strengthen America's caregiving workforce, and empower seniors and people with disabilities to live independently." At a time when the issue of caregiving is becoming increasingly pressing due to a growing need for caregivers, this is important legislation. Until recently, the government has failed to keep up pace with the increasing need for caregivers in communities. This new act will address that gap by introducing trained volunteers into communities to care for older adults and people with disabilities, while enabling them to lead independent lives. To learn more about this new policy, click HERE

Appropriations Bill

On August 23, the Senate passed an $856.9 billion appropriations bill (H.R. 6157) to fund the Department of Defense and the Departments of Labor, Health and Human Services, and Education for FY 2019, which begins on October 1, 2018. The final bill includes $4.11 million for the Lifespan Respite Care Program and $180.89 million for the National Family Caregiver Support Program, including $300 million to fund the Family Caregiver Council at the Administration for Community Living as authorized by the RAISE Act.  Lawmakers also approved a manager's package of amendments by unanimous consent, including an amendment to provide funding for the Secretary of Health and Human Services to establish the Advisory Council to Support Grandparents Raising Grandchildren.

The House still has to take action, but there is now momentum behind final passage of the linked Defense and Labor/HHS appropriations bills. According to House Labor-HHS-Education Appropriations Chairman Tom Cole (R-OK), "I think there's going to be a strong desire by the administration to try and get Defense done without a CR (continuing resolution) and that will lend at least a sense of urgency to getting Labor-H done as well, because you're not going to just get Defense on its own." He added that the Defense spending bill is "a heck of a locomotive to be attached to." Even though the bill has not been brought up on the House floor,  pre-conference meetings are underway. According to today's Roll Call, Chairman Cole said he doesn't expect the House will bring his subcommittee's bill to the floor, but he believes a final version could be sent to the White House before the end of the month.

National Inventory for Self Directed Programs - ASD applied self direction

In the summer of 2016, the National Resource Center for Participant-Directed Services (NRCPDS) completed a National Inventory of self-direction programs in the United States. The inventory builds on the NRCPDS' 2011 and 2013 National Inventories to reflect the impact of changes in Federal law, regulation, and policy designed to promote growth of self-directed long-term support services, as well as the expanding number of state Medicaid programs contracting with managed care entities to administer their long-term services and supports. 

Family Caregiver Perceptions of Prescription Opioid Medication

The World Health Organization (WHO) has called for prompt detection and treatment of mental health and substance use disorders in elderly adults. Despite this call to action, currently there are no screening tools designed to specifically identify elderly adults at risk of developing Opioid Use Disorder. Researchers at William James College are collecting data from the perspective of family caregivers to identify changes in the behavior of elderly adults since being prescribed opioid medication. Learn more and take the survey HERE. 


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