Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

NEW! Lifting Our Voices for Caregivers



Caregiver Self Assessment Survey

Family caregivers  provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. The Caregiver Self Assessment Survey is designed to assist caregivers in recognizing the importance of self-care. 

Click Here to print the survey

Click Here to take the survey on line



From Insight to Advocacy - Addressing Family Caregiving as a National Public Health Issue - National Alliance on Caregiving

An important paper that seeks to answer the broader question - What is the impact of caregiving on the public's health. An examination of the relationship between public health issues, public health policy and family caregiving.

Read the full paper Here

9 STEPS to RESPITE CARE for Family Caregivers of Persons with Dementia, Including Alzheimer's Disease - ARCH National Respite Network

Caregivers of family members with dementia including Alzheimer's disease (D/AD) may face special challenges. Sometimes, individuals with dementia or Alzheimer's disease have unique physical, emotional and behavioral conditions that require specialized care. For example, memory, decisionmaking abilities, and behavior associated with D/AD change over time. This results in changing roles within the family and the need for more intensive levels of care. Providing care can be complicated and challenging and will require careful planning.

It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite. Download the Fact Sheet (pdf)

Caregivers of family members with dementia including Alzheimer's disease (D/AD) may face special challenges. Sometimes, individuals with dementia or Alzheimer's disease have unique physical, emotional and behavioral conditions that require specialized care. For example, memory, decisionmaking abilities, and behavior associated with D/AD change over time. This results in changing roles within the family and the need for more intensive levels of care. Providing care can be complicated and challenging and will require careful planning.

It is important for you to be aware of a resource called respite care. Respite services can provide you with a much needed break away from your caregiving responsibilities and this fact sheet can help you find and use respite. Download the Fact Sheet (pdf)


Legislative Updates

VA Mission Act Passes the Senate

The National Alliance for Caregiving applauds Congress for new support for family caregivers through the bipartisan VA Mission Act of 2018 (H.R. 5674), passed by the Senate last week. The bill was recently approved by the House and is expected to be signed into law by the President within the next few weeks. In addition to instituting a number of other reforms that will strengthen the Department of Veterans Affairs (VA) health care system, the VA Mission Act will expand the VA Comprehensive Family Caregiver Program to Veterans injured in service prior to September 11, 2001. Learn more about the VA Mission Act HERE. 


New Medicare Cards Coming Soon - Don't Get Scammed!

Changes are coming to your Medicare card. By April 2019, your card will be replaced with one that no longer shows your Social Security number. Instead, your card will have a new Medicare Beneficiary Identifier (MBI) that will be used for billing and for checking your eligibility and claim status. And it will all happen automatically - you won't have to pay anyone or give anyone information, no matter what someone might tell you.

Watch the video
 


Caregiving Research

Telehealth Caregiver Support Study

Caregivers living with a loved one with memory loss are invited to participate in a telehealth caregiver support study. The study is evaluating the NYU Caregiver Intervention (NYUCI) when delivered via teleconferencing. NYUCI provides counseling and support to caregivers and their families and has proven benefits when offered in person. Eligible caregivers must have access to and comfort using video enabled computer, tablet or phone to participate. If you are a caregiver in NH, FL, TX, OH, SD, WA, MD, VA, AL, WI or MA, please contact Tadessech Hailu at tadessech.hailu@nyumc.org for more information. 

Research Opportunities: Third Annual National Caregiving Conference

Are you conducting a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? Caregiving.com would love for you to conduct your research at their Third Annual National Caregiving Conference on November 9, 10, and 11 in Chicago. Learn more and sign up HERE. 

Family Caregiver Perceptions of Prescription Opioid Medication

The World Health Organization (WHO) has called for prompt detection and treatment of mental health and substance use disorders in elderly adults. Despite this call to action, currently there are no screening tools designed to specifically identify elderly adults at risk of developing Opioid Use Disorder. Researchers at William James College are collecting data from the perspective of family caregivers to identify changes in the behavior of elderly adults since being prescribed opioid medication. Learn more and take the survey HERE. 

 


To learn more, call:

1-800-342-9871

Or go to:

www.nyconnects.ny.gov