What is Respite?

Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary relief to family caregivers who are caring for that child or adult.


Caregiver Self Assessment Survey

Informal (family) caregivers are in crisis and need support.  They alone provide 80% of all long-term care in NYS. NYSCRC understands the unique needs of caregivers. Through training and education, we focus on increasing caregiver access to respite resources. Click here to take the Self Assessment Survey and learn about resources available for self-care.


NY Connects is a trusted resource for anyone who needs information and assistance with linking to long term services and supports. NY Connects can help you understand your care options, find services, learn about supports in caregiving, get answers about health insurance options, and more.

1-800-342-9871
www.nyconnects.ny.gov


Circle of Care: A Guidebook for Mental Health Caregivers

The National Alliance for Caregiving is pleased to present Circle of Care: A Guidebook for Mental Health Caregivers, developed with generous support from the Alkermes Inspiration Grant Program. The Guidebook emerged from On Pins and Needles: Caregivers of Adults with Mental Illness, a national study on mental health caregiving conducted with the assistance of the National Alliance on Mental Illness and Mental Health America and released in February 2016. 

To access the guide, go to our website: http://www.caregiving.org/circleofcare/ 

Falls Prevention Conversation Guide for Caregivers

The National Alliance for Caregiving is partnered with the National Coalition on Aging on a series of resources for family caregivers of older adults. Many caregivers may not realize that 1 in 4 adults over the age of 65 falls every year, injuring themselves and often exacerbating other conditions of aging. Falls are the leading cause of fatal and non-fatal injuries for older Americans; they are costly-in dollars and in quality of life.  

To access the guide, go to our website: http://www.caregiving.org/resources/falls/ 

Grandparent/Kinship Care


A growing number of grandparents and other older relatives find themselves caring for their grandchildren and other relative children due to death, substance abuse, mental illness, incarceration, military deployment and other reasons.

Kinship Navigator is an on-line statewide resource for information and referral where you can access information on laws, legal rights and issues on custody and visitation, eligibility for benefits and entitlement programs, tax credits, respite care and other local services. You can also call their toll-free number at 1-877-454-6463 to speak to a representative.

"Promising Practices in Encouraging & Supporting Grandparents and Relatives Raising Children"

The National Association of Area Agencies on Aging (n4a), in partnership with the Brookdale Foundation Group, created a guidebook to encourage replication of the successful Relatives as Parents Programs (RAPP) operated by the aging network across the nation. The RAPP programs have been a lifeline to grandparents and other relatives who find that they are suddenly raising children.   download here

"Developing Rural Relatives As Parents Programming: Promising Practices- A Collection of Practice Wisdom from Across Rural America"

The information in the manual is based on a combination of published research and extensive surveys and interviews with both service providers and kinship caregivers. Service providers offered input about the unique needs of their rural clients, barriers rural clients may face in accessing services, and strategies that they have used to help their clients. Kinship caregivers across the country offered insight as to what makes great programming for rural grandfamilies. The result of this effort is a collaborative and comprehensive manual showcasing many of the promising practices in use across the country.   Download here

Podcast: Supporting Kinship Caregivers Part 2

Department of Health and Human Services,  Administration for Children and Families - June 16, 2017

Kinship care is the most preferred resource for children who must be removed from their birth parents because it maintains family connections. Approximately one-fourth of children in out-of-home care live with relatives. This podcast, the second of a two-part series, highlights Florida's Kinship Interdisciplinary Navigation Technologically-Advanced (KIN-Tech). Developed to address the large percentage of local kinship families unaware of or not accessing services, KIN-Tech uses a three-pronged approach, including training for peer navigators and cross-agency collaboration. This episode delves into the program's structure and implementation. Listen to the podcast. Listen to Part I of the podcast. 

GrandFacts: State Fact Sheets for Grandparents and Other Relatives Raising Children

Grandfamilies.org - 2017
Generations United, The Brookdale Foundation Group, AARP, ABA Center on Children and the Law, Casey Family Programs, ChildFocus, Child Trends, and the Dave Thomas Foundation for Adoption ave collaborated to update "GrandFacts: State Fact Sheets for Grandparents and Other Relatives Raising Children". These 2017 fact sheets for the fifty states and Washington, DC provide state-specific data, local program resources, benefits, and legal information


Caregiving
Blogs

Alzheimer's Reading Room - Reports on new Alzheimer's research and documents the author's personal experience with caregiving.

Caregiving with Purpose - Award-winning blog written by Dr. Ina Gilmore about fictional character Lisa's jorney through the stages of caregiving.

Caregiving.com Blogs - Family caregivers' personal blogs that cover a variety of topics; it includes the blog of caregiving expert Denise Brown.

The Caregiver's Voice - Written by caregiving expert Brenda Avadian, this blog brings humor and inspiration to caregiving topics.

The Unprepared Caregiver - Written by former caregiver Dr. Azchary White, this honest and informative blog discusses the challenges of caregiving and ways to cope.

What's Hot in PD? - Monthly blog by National Parkinson's Foundation Director Dr. Michael Okun with the latest Parkinson's news and research