Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2

Funded with a federal grant for Lifespan Respite awarded by the Administration for Community Living to the New York State Office for the Aging. Award Number 90L10023-02-2


NEW! Lifting Our Voices for Caregivers

Funding Opportunity | Mini Grant Announcement

NYSCRC is awarding two mini grants in the amount of $3500 for the development or expansion of volunteer respite programs.

Application deadline has been extended to December 14th at 5 PM

Mini grant instructions and application

Grandfamilies in the news

PEW Stateline  - Last June, Governor Andrew Cuomo signed a law that will allow immigrant parents who’ve been detained in NY or who are facing deportation to appoint a guardian for their children.  Stateline published an article on October 25th, If Parents Get Deported, Who Gets Their Children.  Read more here

American Society on Aging - Substance use, most recently the opioid epi­demic, is hurting America’s families and often placing greater responsibility upon grandparents to care for their grandchildren. To learn more about this increasing phenomenon read, Grandparents, Grandchildren, and Caregiving: The Impacts of America’s Substance Abuse Crisis serves as a national legal resource center is support of grandfamilies within and outside the child welfare system. For the 2.6 million grandparents raising their grandchildren across the U.S. the holidays can be a time for both celebration and pain.  Read More - Grandfamilies - celebrating the holidays

AARP Whitepaper on Caregiving

On November 28, 2017, AARP New York convened The Future of Family Caregiving: Leading the Change, a one-day leadership summit in New York City. Experts from state government, aging-service organizations, advocacy groups, and family caregivers gathered to assess the varied and complicated needs of caregivers, as well as share insights into their personal journeys. Innovative programs and models taking place in communities throughout the U.S. and elsewhere were examined. The goal was to analyze key issues common among caregivers, share best practices, assess lessons learned from other efforts, and determine how New York could adapt successful solutions implemented elsewhere to address the unique challenges of its older residents and their caregivers. Read the report HERE.

 Legislative Update

Udall, Heinrich, Klobuchar Introduce Care Corps Demonstration Act
On October 17, U.S. Senators Tom Udall, Martin Heinrich, and Amy Klobuchar introduced the Care Corps Demonstration Act to "build and strengthen America's caregiving workforce, and empower seniors and people with disabilities to live independently." At a time when the issue of caregiving is becoming increasingly pressing due to a growing need for caregivers, this is important legislation. Until recently, the government has failed to keep up pace with the increasing need for caregivers in communities. This new act will address that gap by introducing trained volunteers into communities to care for older adults and people with disabilities, while enabling them to lead independent lives. To learn more about this new policy, click HERE

Appropriations Bill

On August 23, the Senate passed an $856.9 billion appropriations bill (H.R. 6157) to fund the Department of Defense and the Departments of Labor, Health and Human Services, and Education for FY 2019, which begins on October 1, 2018. The final bill includes $4.11 million for the Lifespan Respite Care Program and $180.89 million for the National Family Caregiver Support Program, including $300 million to fund the Family Caregiver Council at the Administration for Community Living as authorized by the RAISE Act.  Lawmakers also approved a manager's package of amendments by unanimous consent, including an amendment to provide funding for the Secretary of Health and Human Services to establish the Advisory Council to Support Grandparents Raising Grandchildren.

The House still has to take action, but there is now momentum behind final passage of the linked Defense and Labor/HHS appropriations bills. According to House Labor-HHS-Education Appropriations Chairman Tom Cole (R-OK), "I think there's going to be a strong desire by the administration to try and get Defense done without a CR (continuing resolution) and that will lend at least a sense of urgency to getting Labor-H done as well, because you're not going to just get Defense on its own." He added that the Defense spending bill is "a heck of a locomotive to be attached to." Even though the bill has not been brought up on the House floor,  pre-conference meetings are underway. According to today's Roll Call, Chairman Cole said he doesn't expect the House will bring his subcommittee's bill to the floor, but he believes a final version could be sent to the White House before the end of the month.

National Inventory for Self Directed Programs - ASD applied self direction

In the summer of 2016, the National Resource Center for Participant-Directed Services (NRCPDS) completed a National Inventory of self-direction programs in the United States. The inventory builds on the NRCPDS' 2011 and 2013 National Inventories to reflect the impact of changes in Federal law, regulation, and policy designed to promote growth of self-directed long-term support services, as well as the expanding number of state Medicaid programs contracting with managed care entities to administer their long-term services and supports. 

Access to Self Directed and Medicaid Managed Long Term Care can provide significant relief for caregivers. 

Below is comprehensive list of resources in New York.

New York Expanded In-Home Services for the Elderly (EISEP)

  • Populations served: Adults (60+) who need help with everyday activities to take care of themselves, want to remain at home, and are not eligible for Medicaid

  • Self-directing participant count: 735

  • Program Website

Mainstream Medicaid Managed Care (MMMC)

  • Populations served: Persons with mental Illness

Consumer Directed Personal Assistance (CDPA) Program- Available under MMMC and MLTC

  • Populations served: Adults with physical disabilities

  • Self-directing participant count: 20,000

  • Program Website

NYS OPWDD Comprehensive Renewal Waiver

  • Populations served: Adults with intellectual/developmental disabilities

  • Self-directing participant count: 10,000

  • Program Website

Partnership Program-  1115 Waiver which gives NY the authority for the CDPA Program

  • Populations served: Seniors and adults with physical disabilities

Self-Directed Care for individuals with Serious Mental Illness  (Pilot)

  • Populations served: Persons with mental Illness

Veteran-Directed Home and Community-Based Services Program (VD-HCBS)

  • Populations served: Adults with physical disabilities and seniors (Veterans)

  • Self-directing participant count: 24

  • Program Website

Family Caregiver Perceptions of Prescription Opioid Medication

The World Health Organization (WHO) has called for prompt detection and treatment of mental health and substance use disorders in elderly adults. Despite this call to action, currently there are no screening tools designed to specifically identify elderly adults at risk of developing Opioid Use Disorder. Researchers at William James College are collecting data from the perspective of family caregivers to identify changes in the behavior of elderly adults since being prescribed opioid medication. Learn more and take the survey HERE. 


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