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NY Connects
NY Connects is a trusted resource for anyone who needs information and assistance about long term services and supports. NY Connects can work with children or adults with disabilities, older adults, family members and caregivers, friends or neighbors, veterans, and helping professionals.

AARP Whitepaper on Caregiving

On November 28, 2017, AARP New York convened The Future of Family Caregiving: Leading the Change, a one-day leadership summit in New York City. Experts from state government, aging-service organizations, advocacy groups, and family caregivers gathered to assess the varied and complicated needs of caregivers, as well as share insights into their personal journeys. Innovative programs and models taking place in communities throughout the U.S. and elsewhere were examined. The goal was to analyze key issues common among caregivers, share best practices, assess lessons learned from other efforts, and determine how New York could adapt successful solutions implemented elsewhere to address the unique challenges of its older residents and their caregivers. Read the report HERE.

From Insight to Advocacy - Addressing Family Caregiving as a National Public Health Issue - National Alliance on Caregiving

An important paper that seeks to answer the broader question - What is the impact of caregiving on the public's health. An examination of the relationship between public health issues, public health policy and family caregiving.

Read the full paper Here

The Opioid Crisis and it's Impact on Kinship Care

New York State Kinship Navigator - November 14, 2017

Kinship care refers to nonparents (grandparents, other relatives and close family friends) who care for children when parents are unable or unwilling to care for their children

In New York State, most of these households provide care privately, and do no receive foster care supports

This extensive article discusses Prevalence, How drug use impacts kinship care and provides links to recent reports, articles and news stories. Proposed Legislation and Recommendations for the President's Commission on Combatting Drug Addiction and the Opioid Crisis. Read the full article

HRSA Training Curriculum: Alzheimer's Disease and Related Dementias

Training for the primary care workforce about dementia, and caring for those affected, is essential. The facts are compelling: currently more than five million Americans live with Alzheimer's disease. Ultimately, one out of every three Americans will die from Alzheimer's disease or another dementia. With federal partners and public stakeholders, HRSA created a curriculum - 16 core modules and four supplemental modules - for health educators to train the primary care workforce about dementia care, and to help providers address caregiver needs. Access the training curriculum HERE.

Supporting People with Dementia and their Caregivers in the Community

The Administration on Aging (AoA) within the Administration for Community Living (ACL) commissioned a supplemental issue of Generations through its National Alzheimer's and Dementia Resource Center (NADRC) in an effort to advance the establishment and enhancement of dementia-capable home and community-based systems. It is titled Supporting People with Dementia and Their Caregivers in the Community. The Generations supplement is comprised of 18 articles authored by experts in a broad range of dementia care and advocacy topics.

This special issue is dedicated to the delivery of information on a range of topics of significance for people living with dementia and their caregivers.  Intended to put dementia care in context, this issue provides insight into evidence-based interventions, person-centered/directed dementia care, underserved and vulnerable populations, and other topics for providing effective home and community-based services. Generations

Understanding the Impact of Family Caregiving on Work (PDF)
The number of workers with eldercare responsibilities is on the rise. This trend highlights the need to better understand the impact of family caregiving on work, and how working caregivers can better manage their work and caregiving responsibilities. -- AARP Public Policy Institute

Caregivers of Older Adults: A Focused Look at Those Caring for Someone Age 50+ (PDF) 
Conducted by AARP and the Public Policy Institute. An estimated 34.2 million American adults in the U.S. have served as an unpaid caregiver to someone age 50 or older in the prior 12 months.

Caregivers of Younger Adults: A Focused Look at Those Caring for Someone Age 18 to 49 (PDF) 
Conducted by AARP and the Public Policy Institute. It is estimated that at least 5.6 million adults in the in the U.S. have provided to an adult family member or friend who is 18 to 49 years of age in the past 12 months.

Caregivers in Crisis: Why NYS Must Act  (PDF)
This 2013 report warns that New York will pay the price if it doesn't act to support the state's millions of family caregivers. New York state is already at the bottom of the barrel in providing needed supports for 4.1 million unpaid caregivers. The report says that a looming demographic shift will mean fewer people able to provide care - valued at $32 billion annually. 

Respite Support in Publicly Funded Long Term Services and Supports (PDF)
This compilation, prepared as part of New York's Lifespan Respite grant initiative, provides an overview of respite support and how it is structured in different systems.  For information about specific respite services that may be available to consumers in New York communities, please contact your local NY Connects program.

New York State Office for the Aging (NYSOFA)

FLHSA Sage Commission Report

ARCH: Volunteer Respite Manual

Faith Based Respite

Caregiver Training Resources Project

Kinship Navigator

Multiple Systems Navigator  
A comprehensive disability information resource built for youth, parents, caregivers and direct-care workers - all of whom rely on supports and services from multiple child and family serving system

Managing Chronic Health Condition in School  Approximately half of all adults are affected by chronic conditions. The Centers for Disease Control & Prevention reports 117 million Americans experience symptoms from at least one of these long-term illnesses, and a significant number of these are high school and college students. Thankfully, most can be managed with medication and healthy lifestyles, meaning even the perpetually busy student can enjoy their school experience while managing an illness. The following guide looks at the most common chronic conditions and provides tips on balancing health and happiness from both an expert and a student with insider knowledge on what it takes to succeed.