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NY Connects
NY Connects is a trusted resource for anyone who needs information and assistance about long term services and supports. NY Connects can work with children or adults with disabilities, older adults, family members and caregivers, friends or neighbors, veterans, and helping professionals.

The DSP Crisis: Reimbursement Rates, Retention Rates, and Research

Carli Friedman, Council on Quality and Leadership, February 27, 2019

Although Direct Service Professionals (DSP) are key to enhancing people with intellectual and developmental disabilities' (IDD) quality of life, DSPs often barely receive minimum wage for providing personal care. There is little standardization of personal care services in Medicaid Home and Community-based Services (HCBS) waivers. Low wages are a leading cause of DSP turnover and affect people with IDD's opportunity to be integrated in the community. Hence, DSPs are crucial to long-term services and supports (LTSS) for people with IDD in the United States. The researchers hope that stakeholders will use the findings to advocate for DSP workforce issues to improve both the lives of DSPs and the people with IDD they assist. Read the article and the journal abstract.

New Study Reports Health Benefits of Volunteering for Lower-Income Older Adults 

Results from an independent study sponsored by the Corporation for National and Community Service reveal that Senior Corps volunteers are not only improving the lives of others, they are also improving their own!

This national study collected data from 1,200 first-time Senior Corps Foster Grandparent and Senior Companion volunteers. Nearly all volunteers serving through the Senior Corps programs reported household incomes of twenty thousand dollars or less. Senior Corps volunteers reported significantly higher self-rated health scores, compared to older adults in similar circumstances who do not volunteer.  In addition, volunteers reported that their service provided opportunities for personal growth and a sense of accomplishment. Other key findings include:

  • 84 percent of Senior Corps volunteers reported improved or stable health after serving approximately two years in the program.

  • 88 percent of Senior Corps volunteers who first reported a lack of companionship reported a decrease in feelings of isolation.

This independent research also includes a Senior Companion Program caregiver study that highlights that respite services provided by Senior Companion volunteers positively impact the health and well-being of family caregivers.L earn more about these research studies Here

The Caring Company: How Employers Can Help Employees Manage Their Caregiving Responsibilities While Reducing Costs and Increasing Productivity

Joe Fuller and Manjari Raman, Harvard Business School, January 2019

In this article, the authors examined how people providing care to family members or friends fare professionally, are affected at work, and what are the shortcomings and future implications for employers who do not support caregivers. Companies are facing a caregiving crisis but refuse to acknowledge it. Increased health care and caregiving costs, and changing demographics are pressuring American employees striving to balance work and caregiving. Many employers are unaware of the growing costs of this hidden "care economy". The survey results show the importance and urgency of this issue. Practical solutions for employers to support their employees who provide caregiving are offered in the report. Access the extensive media coverage and read the report.

The Ripple Effect: An In-Depth Look at the Hidden Impact of the Opioid Epidemic on Children

A new report from United Hospital Fund and Milbank Memorial Fund makes clear the magnitude of the opioid epidemic's impact on newborns, young children, adolescents and their families. It also looks at the needs of kinship caregivers, typically grandparents raising grandchildren. Learn more.

AARP Whitepaper on Caregiving

On November 28, 2017, AARP New York convened The Future of Family Caregiving: Leading the Change, a one-day leadership summit in New York City. Experts from state government, aging-service organizations, advocacy groups, and family caregivers gathered to assess the varied and complicated needs of caregivers, as well as share insights into their personal journeys. Innovative programs and models taking place in communities throughout the U.S. and elsewhere were examined. The goal was to analyze key issues common among caregivers, share best practices, assess lessons learned from other efforts, and determine how New York could adapt successful solutions implemented elsewhere to address the unique challenges of its older residents and their caregivers. Read the report HERE.

From Insight to Advocacy - Addressing Family Caregiving as a National Public Health Issue - National Alliance on Caregiving

An important paper that seeks to answer the broader question - What is the impact of caregiving on the public's health. An examination of the relationship between public health issues, public health policy and family caregiving.

Read the full paper Here

The Opioid Crisis and it's Impact on Kinship Care

New York State Kinship Navigator - November 14, 2017

Kinship care refers to nonparents (grandparents, other relatives and close family friends) who care for children when parents are unable or unwilling to care for their children

In New York State, most of these households provide care privately, and do no receive foster care supports

This extensive article discusses Prevalence, How drug use impacts kinship care and provides links to recent reports, articles and news stories. Proposed Legislation and Recommendations for the President's Commission on Combating Drug Addiction and the Opioid Crisis. Read the full article

HRSA Training Curriculum: Alzheimer's Disease and Related Dementias

Training for the primary care workforce about dementia, and caring for those affected, is essential. The facts are compelling: currently more than five million Americans live with Alzheimer's disease. Ultimately, one out of every three Americans will die from Alzheimer's disease or another dementia. With federal partners and public stakeholders, HRSA created a curriculum - 16 core modules and four supplemental modules - for health educators to train the primary care workforce about dementia care, and to help providers address caregiver needs. Access the training curriculum HERE.

Managing Chronic Health Condition in School  Approximately half of all adults are affected by chronic conditions. The Centers for Disease Control & Prevention reports 117 million Americans experience symptoms from at least one of these long-term illnesses, and a significant number of these are high school and college students. Thankfully, most can be managed with medication and healthy lifestyles, meaning even the perpetually busy student can enjoy their school experience while managing an illness. The following guide looks at the most common chronic conditions and provides tips on balancing health and happiness from both an expert and a student with insider knowledge on what it takes to succeed.

Elder Abuse Prevention

Supports and Tools for Elder Abuse Prevention

The National Center on Elder Abuse (NCEA) and the National Association of Area Agencies on Aging (n4a) STEAP (Supports and Tools for Elder Abuse Prevention) Initiative includes free and ready-to-use materials to engage and educate your community about preventing elder abuse. This includes a toolkit with practical and customizable elder abuse education and outreach resources, including a brochure, fact sheets, outreach guide, and presentation materials.

Click here 

2019 Alzheimer's Disease Facts and Figures

Alzheimer's Association, March 2019 

The report's Caregiving chapter (pages 31-41) notes that last year more than 18.5 billion hours of informal care were provided by Alzheimer's and other dementia caregivers, valued at almost $234 billion. Along with feelings of reward for their service, caregivers also experienced greater stress. Dementia caregivers' use of respite doubled between 1999 and 2015. Respite can be an individual offering or part of a multi-component approach to assist dementia caregivers. Download the  infographic and watch the  video summary.


New York State Office for the Aging (NYSOFA)

FLHSA Sage Commission Report

ARCH: Volunteer Respite Manual

Kinship Navigator

Multiple Systems Navigator  
A comprehensive disability information resource built for youth, parents, caregivers and direct-care workers - all of whom rely on supports and services from multiple child and family serving system