Advocacy

young woman with Down's Syndrome and mother

Personal calls and letters make a difference

Let your voice be heard! Tell your elected officials that you believe that caregivers need their support. Find a list of all New York State's elected officials here.

Help to support Caregivers in New York!

Help to support Caregivers in New York!


Medicaid Services Investment and Accountability Act of 2019 Passes House

On March 25th,the House passed the  Medicaid Services Investment and Accountability Act of 2019 (H.R. 1839) that extends protections for Medicaid recipients of home and community-based services against spousal impoverishment for another six months; provides an additional $20 million for the Money Follows the Person Rebalancing Demonstration; extends the Community Mental Health Services Demonstration Programthrough June 30, 2019; and establishes a State Medicaid option to provide coordinated care to children with complex medical conditions through health homes. The bill is now in the Senate for consideration.

Appropriations Bill

On August 23, the Senate passed an $856.9 billion appropriations bill (H.R. 6157) to fund the Department of Defense and the Departments of Labor, Health and Human Services, and Education for FY 2019, which begins on October 1, 2018. The final bill includes $4.11 million for the Lifespan Respite Care Program and $180.89 million for the National Family Caregiver Support Program, including $300 million to fund the Family Caregiver Council at the Administration for Community Living as authorized by the RAISE Act.  Lawmakers also approved a manager's package of amendments by unanimous consent, including an amendment to provide funding for the Secretary of Health and Human Services to establish the Advisory Council to Support Grandparents Raising Grandchildren.

Appropriations Bill

The House still has to take action, but there is now momentum behind final passage of the linked Defense and Labor/HHS appropriations bills. According to House Labor-HHS-Education Appropriations Chairman Tom Cole (R-OK), "I think there's going to be a strong desire by the administration to try and get Defense done without a CR (continuing resolution) and that will lend at least a sense of urgency to getting Labor-H done as well, because you're not going to just get Defense on its own." He added that the Defense spending bill is "a heck of a locomotive to be attached to." Even though the bill has not been brought up on the House floor,  pre-conference meetings are underway. According to today's Roll Call, Chairman Cole said he doesn't expect the House will bring his subcommittee's bill to the floor, but he believes a final version could be sent to the White House before the end of the month.

The Bipartisan Congressional Assisting Caregivers Today (ACT) Caucus

Family caregivers are the backbone of our care system. Today about 40 million unpaid family caregivers in the United States help older parents, spouses, aunts, uncles and other adult loved ones live independently at home — where they want to be. Additionally, about 3.7 million family caregivers provide care to a child under age 18 because of a medical, behavioral or other condition or disability. About 6.5 million family caregivers assist both adults and children. Caregivers help their loved ones while juggling work, raising children and more. Many of them are on call 24/7 and can’t even take a break.

These caregivers have a big job, but some basic support — and commonsense solutions — can help make their big responsibilities a little bit easier. The bicameral, bipartisan Assisting Caregivers Today (ACT) Caucus, launched March 3, 2015,  focuses on bringing greater visibility to family caregivers, the challenges and opportunities that individuals of all ages face as they seek to live independently, and the need for solutions.

These caregivers have a big job, but some basic support — and commonsense solutions — can help make their big responsibilities a little bit easier. The bicameral, bipartisan Assisting Caregivers Today (ACT) Caucus, launched March 3, 2015, focuses on bringing greater visibility to family caregivers, the challenges and opportunities that individuals of all ages face as they seek to live independently, and the need for solutions.